Frequently Asked Questions
Here are some answers to the most frequently asked questions. Click on one of the links to learn more.
How long is the Lupus Loop & Walk for Lupus Now ?
The runners will run 5K distance and the walkers will walk approximately 2 Miles.
Where is the Lupus Loop site located?
The site is located at the Carousel House on Belmont Avenue & Avenue of the Republic, Philadelphia, PA 19131 in beautiful Fairmount Park.
What time does Registration begin?
Registration begins at 8:00 a.m. October 25, 2009.
What time does the actual run/walk begin?
The run/walk begins at 9:15 a.m. October 25, 2009.
What happens if it rains?
The event is held rain or shine.
I cannot walk or run, but would like to fundraise. May I?
Yes. You may register as a Virtual Participant and use the fundraising page that is automatically created during registration to collect donations from your friends, family, and co-workers etc... Download the Individual Participant Guide to learn how to customize your page for your needs and email your supporters or call the office for assistance.
Can I volunteer for 18th Annual Lupus Loop?
Volunteers are needed for a variety of jobs, both before and during the Loop. You can help us organize and recruit sponsors for the event, or help on the day of the event. Jobs range from set up and tear down to assisting with check-in. Some volunteer opportunities do not require walking or standing. Please check with us to see if you can help! Click on the Get Involved link on the Lupus Loop webpage and fill out the form and mail it to the office. Someone will contact you regarding volunteer opportunities.
Is there a registration fee?
The registration fee is $20 until October 14th. After that, and on Loop Day, the registration fee is $25. Children 12 and under are $10 at all times. Individuals or Team Members who plan to raise $100 or more may choose the fee waiver option during the registration process. Pre-registration closes at Midnight on October 19, 2009.
Who should my donors make checks payable to and where should they be sent?
Checks should be made payable to the Lupus Foundation of America (or LFA). Please convert cash to a check or money order before sending. Write your name and 2009 Lupus Loop in the memo section of each check or money order. If you want your donation to support a particular team or fundraiser, please provide that information as well and mail to:
Lupus Foundation of America
Philadelphia Tri-State Chapter, Inc.
500 Old York Road, Suite 110
Jenkintown, PA 19046
Do I receive prizes for raising money for the 18th Annual Lupus Loop?
Individuals or Teams who raise $250 receive a course marker for dedication. The highest Individual Fundraiser, raising over $5000 can receive a three-day, two- night stay at a location to be announced. The Team Challenge Award is awarded to the team that raises the most money in support of lupus. As a team, team member or individual, you can become a part of the Circle of Friends by raising a minimum of $1000.
How do I start a team?
Create a team name by following the instructions included in the Team Kit or click on the Register Button on the Loop website and use the Create a Team Button to create your team. You can use your team page to spread the word among family, friends, and colleagues. Encourage every team member to raise at least $100. We help make it easy by providing you all the materials and tools you need to ensure success in building your team. Learn more by visiting Tools on the navigation bar either for Teams or Individuals.
Can I walk/run if I don’t form a team?
History shows us you will have more fun and raise more money if you come as part of a team, but it is perfectly fine to walk as an individual.
Does a team need to have a minimum number of walkers?
We encourage participants to recruit a minimum of 5 team members.
Am I allowed to run instead of walk?
Yes.
How does the Lupus Foundation of America, Inc. use the contributions?
Funds raised by the 18th Annual Lupus Loop 5K Run & 2 Mile Walk for Lupus Now® are used to support research, education, and support services for those affected by lupus in the Philadelphia Tri-state area. To get more information on how the Lupus Foundation of America uses contributions, visit our website at www.lupustristate.org or call us at 215-517-5070 or 866-517-5070 (Toll-Free in DE, PA & NJ only) for more information.
Is my information secure?
Yes. Active Giving has made every effort to protect your information. Active Giving uses industry-standard SSL encryption techniques to make sure that your credit card information, passwords, and personal information travel securely over the Internet.
How do I register for the 18th Annual Lupus Loop & Walk for Lupus Now online?
Simply click on the Register button on the Lupus Loop website. If you plan to have a team or would like more information before registering, please download a 2009 Team Kit from the Team Center or a 2009 Individual Participant Guide in the Tools section of the navigation bar.
What is lupus?
Lupus is an acute and chronic (lifelong) autoimmune disease in which the immune system is unbalanced, causing inflammation and tissue damage to virtually every organ system in the body.
What are the signs and symptoms of lupus?
Lupus is very hard to diagnose because symptoms vary from person to person, can come and go over a long period of time, and can mimic symptoms of other illnesses. It is important to know the symptoms of lupus and to know if you are at risk for this disease. Symptoms of lupus include joint and muscle pain, severe fatigue, a rash caused by or made worse by UV sunlight or fluorescent lights, low grade fever, and hair loss.
What are the health consequences of lupus?
Lupus is a serious disease that can damage vital organs, such as the kidneys, heart, lungs, and brain. The disease can cause seizures, strokes, heart attacks, miscarriages, and organ failure leading to significant disability or death.
How many people have lupus?
There are an estimated 1.5 million Americans living with lupus. Approximately 40,000 people are affected by lupus in the Philadelphia Tri-State region.
Why is it important to recognize the signs and symptoms of lupus?
More than half of the people with lupus suffer four or more years and visit three or more doctors before receiving a correct diagnosis. Late diagnosis and delayed treatment contribute to significant tissue damage leading to organ failure, disability, and death.
Who can develop lupus?
Ninety percent of the people with lupus are women. Eight of 10 new cases of lupus develop among women of childbearing age; however, women of all ages as well as men and children develop the disease. Lupus is two to three times more common among African Americans, Hispanics/Latinos, Native Americans, and Asians a disparity that remains unexplained.
